"Social media communities on Facebook or other platforms can offer wonderful support, encouragement and comfort, but always be cautious and try to verify who you are connecting with"

"Clear a drawer or cupboard in your kitchen at home for the medication. Don't have it all out on the top otherwise it's a constant reminder of illness"

"Don't be frightened to ask questions and sometimes you need to ask the same question more than once as you don't take everything in."

"Take a notebook and pen to hospital visits and appointments to write things down. Ask medical staff to write things down, especially medical terms which you can't spell or pronounce."

"Don't Google too much - stick to the NHS and hospitals websites, and just one or two others. You will drive yourself mad if you over-research."

"We were lucky as our other child was older and driving so was independent but we had to split ourselves and were a divided family for 9 months. Use Clic House and Sam's House so your family can be together when appropriate. They are fabulous and it's a home from home."

"It's really common for a child’s mental health to be impacted by their cancer treatment, almost as much as the physical effects."

" When we were in hospital I was collecting wee every two hours!"

" Despite the way the cancer diagnosis takes over your life and just how ill my child was, I was amazed by their resilience."